Sunday, August 27, 2017

New Diagnosis

I went to the ER last weekend, Friday night, and they kept me through midday Sunday. I have another (this would be the 8th I'm aware of in 2 years) kidney stone, but they were more concerned with what turned out to be Diverticulosis. After some research it seems to potentially answer why so many frequent kisney stones from an otherwise healthy kidney. 

Apparently other organs throwing a fit (including but not limited to kidneys throwing stones) is actually very common with onset of Diverticulosis. 

Also it is unusual but not unheard of in people as young as me. I just turned 34 mid July. I don't know if it's a common comorbid condition with EDS and POTS, but I would be surprised to learn otherwise. 

The joy of autoimmune diseases is that they like to trigger each other in a seemingly never ending chain of pain and medical confusion.

Wednesday, August 16, 2017

Kidney trouble?

Hmm. So I think I may have an ER visit in the next day or two. My left kidney is inflamed (again) and it threw a stone, which I've already passed on July 24th. Today is August 16th and I've had visible surface bruising (confirmed by Faythe and Mom) for 2 days over that kidney and next to my spine.

I brought up my continuing pain at my regular Dr visit about a week and a half ago. My doctor prescribed a very limited script of Norco for the 10/10 pain days, and I've actually had to take it two or three times THIS WEEK which is pretty unheard of for me. I have a ridiculously high pain tolerance and I've been debating the pros and cons of an ER visit for at least 5 days now. I'm trying to hold out until Friday. If it gets better then I will follow up with Dr and maybe ask for bloodwork. If it doesn't,  it's probably an emergency.

I always feel like I'm over reacting about my pain or health even though if I am even considering an ER visit it is 100% of the time something serious, and often far more serious than I had guessed, probably because I put it off.

So.. I guess if you pray, pray it's not a kidney infection or anything that is likely to kill me. This is part of why I fall off the grid so often. I'm sorry.

I miss you guys and hope to catch up with y'all soon. 

Tuesday, August 15, 2017

Time is perplexing.

 I never mean to fall off radar. Planned breaks from internet or other formats are announced ahead of time if and when thry are intentional. 

I had been switched from Ritalin to Concerta for treating ADHD, but the Concerta made me lethargic and didn't help with focus. Combining that with increased difficulty breathing, erratic body temperature, and erratic changes in blood pressure, it was too dangerous to continue. So I've been swapped again but I don't know the name of the new medication. I started a week ago tomorrow, I believe. 

I don't remember much since my early birthday party which was also on the first day of Concerta. I've missed the fall deadline for school, so I'll be attempting to iron out details for resuming in spring, health allowing. 

If I can figure out how, I will share pics from Instagram. I'm sure there is a way but I don't have the spoons to figure it out just now.

About Me

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I'm Rory or Rorek in most places. I design, sew, and craft, primarily for my Asian Ball-Jointed Dolls. I also dabble in interior design, but I'm a little out of practice.

I post about the things I enjoy, which are sewing, photographing my dolls, designing new outfits, knitting, which I started in September of 2008, thanks to my Mom, and occasionally drawing, or painting.

I also post about Life Events and how they affect me and those that I love.

Currently I am living in DFW, Texas in the USA and working towards a degree in Theology.