Thursday, February 18, 2016

Medical Health

So, I saw a neurologist back in November and was put on a daily medication and an as needed medication, both of which were supposed to help with my migraines, and neither of which do. The daily medication is for certain the culprit for the kidney stone I developed and then passed, which is actually good news. My being sensitive and resistant to medication is a big red tick in the check list for towards a positive diagnosis of both conditions that my neurologists thinks that I have.

The good news is that I will be stepping off of the old medications immediately, and switching to a new daily, and a new (expensive UGH) as needed medication, and also a supplement that is supposed to help prevent migraines. He wrote a script for the supplement the first time but I never picked it up. I don't remember why, and I found the script for it later (like when I did my taxes what?) going through medical receipts. I don't have the new meds yet because the pharmacy has to order them, but they should be in tomorrow, and I'll pick them up after class.

Can I just say, again, that I really like my neurologist? I will see him once more before I leave for Texas. I missed my original followup which was scheduled for January 19th I think, because of my kidney stone, but they were all really understanding about that. One of the things that stands out about Dr Karim, is that he takes me seriously, takes my pain seriously, is respectful, and takes my concerns seriously. I really appreciate that, and I wish that it were possible to continue to see him through the diagnosis stage and finding the right medication stage, and I think he wishes that too. He is excited by how different my case is medically, but he is human and respectful about it and acknowledges that his excitement is NOT about my pain, just the challenge that it provides for him. He likes puzzles, and I am a medical puzzle.

Probably diagnoses at this point, POTS, and EDS. EXTENSIVE further testing needed.

Tuesday, February 9, 2016

Official Arrival of Souldoll Asiter (2nd) was February 8, 2016

Awhile back I had in my signature on Den of Angels that I was looking to purchase an old Souldoll boy body (to match my Asiter head), and after some time I was messaged by an old school DOA member asking if I might be interested in theirs. They had a whole doll but would be willing to split. Out of curiosity, I asked which doll, and it turned out it was an unmodded Asiter with a beautiful company faceup.

I crunched the numbers with Osaka, determined what length of layaway I would need to make it work (for the whole unmodded doll), and then immediately got very sick. x_x Luckily for me, the seller was incredibly kind about it, and held on to him for me, and allowed me to pay her as I was able turned out to be the remainder when my state tax return came in. I am very thankful and must say this is the nicest transaction I've had that has not been with a long established friend, ever. I hope to stay in contact and foster further friendship. I purchased from Cynthia in FlintHills on Den of Angels.

In a moment of delightful coincidence, I received a parcel from Samseramsamsam, whom I had sent a neck donut and some tidbits from Osaka and DragonMouse to help with the hybridization of her Minifee. So when I intercepted the postman he had quite the armful of stuff for me.

I neglected to take proper box opening photos but I did take photos of all the things that were sent in my parcel from Germany, and there are I hope some good photos of my new boy in here. PHOTO HEAVY.













And then my camera couldn't keep up, so I borrowed Osaka's with her permission. The great kilt outfit was also a welcome home gift from her for the new boy, whose name we have not yet settled.







Showing off the beautiful handknits that Samseramsamsam sent us.






There will be another post up either later today or tomorrow after errand running because as I slept off the worst of a really nasty migraine, Osaka kindly faceupped Ed for me, and he looks just stunning.

Monday, February 8, 2016

The State of The Rory

I got another written warning regarding illness related absences at work on Sunday. The dates on the paper align with my kidney stone absences. I am increasingly frustrated. I woke up today and had an anxiety attack and then fell down and torqued my back, causing bruising right along the spine. I remembered after the fact some advice I was given years ago, to let myself fall rather than trying to catch myself because I am less likely to be injured as badly if I hit the ground, and more likely to injure my spine and/or shoulders if I try to catch myself when I am falling. And that's what I've done. I wrenched my right arm badly, left arm almost out socket which is just about a daily thing now, and have swelling in my lower back radiating up on both sides of the spine.

I was scheduled to work today but my back is still swollen badly and every time I try to stand or move I get stabbing pain. My arms are back where they are supposed to be, but I am aggravated. I feel like my time with this job is ticking down and I can't do anything about it because it's my health that is the issue, not my work ethic. So I called out.. again, explained that I had fallen and was unlikely be able to get my back in order in time to be useful for my shift, and my manager was understanding and marked me down as called out.

I expressed to Osaka last night, and several times recently that I am SO TIRED of being sick. I have not been truly well since I was hospitalized last June. My health has been on a steady decline since then, and no matter what I try to do to heal and recover my body seems to be laughing at me and saying "NO." I am so damned frustrated, and I don't know what to do.

I guess if/when I get laid off for being sick, I will focus on school until I move at the end of Spring semester, and put in for work. I could get lucky and find something temporary that will accommodate my health issues and school schedule. I could also get hit by a bus tomorrow but I won't know if I don't try.

In not health news, I will have some doll stuff up for sale or trade soon-ish as soon as I have a day with good lighting and a few hours of piece and quiet. I may have wigs and clothes, but I'm probably gonna weed out resin bits first, and then worry about wigs, and eyes. I like having extra wigs and eyes on hands as placeholders and they usually find a home in someone eventually.

About Me

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I'm Rory or Rorek in most places. I design, sew, and craft, primarily for my Asian Ball-Jointed Dolls. I also dabble in interior design, but I'm a little out of practice.

I post about the things I enjoy, which are sewing, photographing my dolls, designing new outfits, knitting, which I started in September of 2008, thanks to my Mom, and occasionally drawing, or painting.

I also post about Life Events and how they affect me and those that I love.

Currently I am living in DFW, Texas in the USA and working towards a degree in Theology.