Oh wow, I just realized it's been 10 days since I posted anything. Sorry about that!
I
have been slowly healing. On June 10th, I had my follow up at a clinic a
bit out of the way, and their "follow up" was to take blood and send me
back to the hospital I came from for chest x-rays. Yesterday I received
from this clinic a one page synopsis of "pneumonia" with no other
information. Yes, I am well aware that I have/had "pneumonia". That's
why I had the follow up, to check how it's healing.
I ended up
following my instincts and several hours later after feeling completely
dissatisfied with my "follow up" and the pain that I was in, I went back
to the ER. They took some blood of their own, a urine sample, and a
second x-ray even though I'd had one done in the same hospital that
afternoon.
There I received actual follow up. "How are you
feeling? Where does it hurt? How does it hurt? Okay, based on that, we
have progress in your healing, the infection is slowly clearing up, but
please follow up with your REGULAR doctor in the next two weeks or so to
make sure it's cleared up then. The pain is normal, but you are
dangerously dehydrated, so here are some IV fluids, and here is
something for the pain, please use it sparingly."
This is the
sort of interaction that I am used to with my own doctor so this is the
sort of thing I was expecting from the clinic not "Oh we're just going
to take some blood and send you back to the hospital for x-rays."
On
top of that, there were some issues with misgendering even when I
showed documentation and explained my medical conditions. The paper I
received that stated "pneumonia" with no context had me down as female,
which legally, I am not. The Sentara Princess Anne hospital records show
me as male (which is LEGALLY correct), with a note of my medical
condition so that my nurses and doctors are informed. I know this,
because I am able to check my chart online because this is a really
fantastic and tech savvy medical group.
When I first got home
from the hospital I spent most of my awake time in a pain-haze, and I
was sleeping on the sofa so I didn't aspirate more stomach acid. One
positive is that I've finally kicked soda. I've been trying to give up
soda for months but the week long migraines (which appear to have been
an early symptom of the pneumonia) had me in a tight spot with that, and
also going through my rather expensive migraine meds like crazy.
At
this point I am still sore, and physically weak but I feel hesitantly
comfortable saying that I am actually improving. I've been craving
healthy foods and trying to follow through and eat them. My biggest
concern is actually in regards to work. I'm nervous that they won't
allow me to take on a non-seasonal position when this one ends because
of my health.
I have received some help with the medical bill
thanks to those who have been able to help via my crowdfunding page on
You Care. I'm still waiting to receive the final bill from the hospital
and I've been checking my chart online every so often to see if billing
has updated so I have a real number.
TLDR: I'm sorry I didn't update for a week and a half. I am slowly healing. Not out of the woods yet but showing improvement.
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